Created in 2005 after four mothers lost, what appeared to be, their healthy children to sudden cardiac arrest, Parent Heart Watch was born and dedicated to protecting youth from sudden cardiac arrest (SCA). With the generosity of their founding sponsor, The Medtronic Foundation, Parent Heart Watch has been spreading awareness of the tragedies of youth SCA, as well as stories of survivors who were able to live because of primary and secondary prevention strategies.
The purpose of Parent Heart Watch is to be a platform for victims that helps in transitioning them from debilitating grief, or by marshaling the power of their survivorship and empowering them to create life-saving community programs. Joined by passionate prevention advocates, medical and allied health professionals, their union has been the inspiration for groundbreaking research studies to fill the critical void of data on youth lost to SCA, as well as important collaborations and coalitions that advance prevention.
Their comprehensive education and compelling best practice models have inspired the creation of primary and secondary prevention programs in nearly every state and over 100 communities across the nation, impacting more than a million youth and counting. Parent Heart Watch drives the national dialogue on youth SCA/SCD prevention, with PHW continually working to motivate education, sports, medical and policy-making stakeholders to address a syndrome that the Wall Street Journal has called “one of medicine’s most catastrophic and little-understood events.”
The mission of Parent Heart Watch (PHW) is to be the national voice solely dedicated to protecting youth from sudden cardiac arrest and preventable sudden cardiac death. PHW undertakes this mission by leading and empowering others through education and advocation for change. Sudden Cardiac Arrest can be prevented through the right steps and precautions. By 2030, PHW plans to eliminate all preventable deaths in youth.
Their mission is brought to life through:
• Awareness of sudden cardiac arrest and its true incidence in youth
• Early detection of heart conditions through recognition of warning signs and risk factors and
• Cardiac Chain of Survival training
• Widespread & proper placement of automated external defibrillators (AEDs)
• Cardiac emergency response planning anywhere youth congregate
• Mandatory & systematic registry on the incidence of SCA/SCD in youth
-Vlad Elizarov, Alexander’s Hope Intern